Rare Disease: Plasminogen Deficiency (PLGD)

This Stream includes all Videos from our Rare Disease: Plasminogen Deficiency (PLGD) Youtube playlist

  • Webinar Session on Plasminogen Deficiency: Expand your knowledge42:41

    Webinar Session on Plasminogen Deficiency: Expand your knowledge

    This webinar will provide a comprehensive and timely overview on management of Plasminogen Deficiency, including strategies for coping with a chronic disease. In this webinar, you’ll learn - Causes

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  • Plasminogen Replacement Therapy for Congenital Plasminogen Deficiency2:17

    Plasminogen Replacement Therapy for Congenital Plasminogen Deficiency

    At Prometic Life Sciences we are committed to addressing unmet medical needs in rare diseases such as Congenital Plasminogen Deficiency (PLGD).

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  • Plasminogen Deficiency Awareness Week 20181:31

    Plasminogen Deficiency Awareness Week 2018

    Why is it so important to talk about Plasminogen Deficiency? To recognize the signs and symptoms To provide more information on PLGD To support patients and family members To share experiences and kno

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  • Plasminogen Deficiency and its impact on family members3:37

    Plasminogen Deficiency and its impact on family members

    Dealing with an extremely rare disease such as Plasminogen Deficiency can be very difficult for the family members as well. Dr. Bein covers the main challenges that parents and siblings may encounter

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  • Amanda's Testimonial2:49

    Amanda's Testimonial

    Meet Amanda who’s been a caregiver for the past 2 years. Learn more about Plasminogen Deficiency Awareness Week at plgdweek.com

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  • Amy's Testimonial4:01

    Amy's Testimonial

    Meet Amy who’s been a caregiver for the past 2 years. Learn more about Plasminogen Deficiency Awareness Week at plgdweek.com

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  • Jessica's Testimonial3:35

    Jessica's Testimonial

    Meet Jessica who’s been a caregiver for the past 14 years. Learn more about Plasminogen Deficiency Awareness Week at plgdweek.com

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  • WISEMap for Caregivers2:28

    WISEMap for Caregivers

    Learn how to better identify missing resources in your caregiving network. Learn more about Plasminogen Deficiency Awareness Week at plgdweek.com

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  • Patient Journey4:17

    Patient Journey

    Meet Sara and Gaby, who've just arrived home with newborn baby Hania. Learn more about Plasminogen Deficiency Awareness Week at plgdweek.com

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  • Heather's Testimonial3:04

    Heather's Testimonial

    Meet Heather, 43, how has been dealing with Plasminogen Deficiency since she was a baby. Learn more about Plasminogen Deficiency Awareness Week at plgdweek.com

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  • Behind the Mystery: Plasminogen Deficiency (PLGD)8:57

    Behind the Mystery: Plasminogen Deficiency (PLGD)

    Plasminogen Deficiency (PLGD) is an ultra-rare genetic disease that can have devastating effects on multiple organ systems throughout the body. Ligneous Conjunctivitis (LC) is a sentinel manifestation

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  • Andrea's Testimonial3:15

    Andrea's Testimonial

    Meet Andrea, 17, how has been dealing with Plasminogen Deficiency since the age of 3. Learn more about Plasminogen Deficiency Awareness Week at plgdweek.com

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  • The Psychological Impact – Dr. Sarah Bein5:35

    The Psychological Impact – Dr. Sarah Bein

    Working as a professional psychiatrist, and being a Plasminogen Deficiency patient herself, Dr. Sarah Bein is the right person to explain how difficult it can be to deal with this rare disease. Learn

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  • Treating Plasminogen Deficiency - Prometic0:47

    Treating Plasminogen Deficiency - Prometic

    Sarah Bien, MD, is a physician as well as a patient with plasminogen deficiency. In this video clip, she talks about how it is diagnosed and treated--and how past treatment options actually made the c

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  • What is Plasminogen Deficiency1:50

    What is Plasminogen Deficiency

    Sarah Bein, MD, is a physician but also a patient with plasminogen deficiency. In this video clip, she talks about the pathophysiology and genetics of this rare condition.

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  • Clinical Trial for Plasminogen Deficiency1:59

    Clinical Trial for Plasminogen Deficiency

    Plasminogen deficiency used to be treated with surgery, but trauma such as surgery can lead to the condition getting worse, Sarah Bein MD explains.

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